Archive for August, 2014

Thawing to the ALS Ice Bucket Challenge

Ann Ralston taking the ALS Ice Bucket Challenge, 2014-08-20Until last night, I watched the ALS Ice Bucket Challenge (#alsicebucketchallenge)¬†with mild¬†interest and curiosity. What would inspire people to dump a bucket of¬†ice water on themselves, or stand still while others dumped it on them? Wouldn’t the normal response to be to RUN AWAY?

I watched a few YouTube videos and Facebook postings of people dousing themselves with ice-water, and sat up a little more when top tennis players, including¬†Novak Djokovic¬†and Roger Federer, were challenged.¬†I thought it was great that athletes, business moguls and past presidents, and even my awesome nephew, Alex, were making a positive statement about ALS (Lou Gehrig’s disease).

I was interested in the implications for the disease and research, given this massive infusion of funding, and how the organization could continue to be successful with this radical change. I wondered how we could create something so simple and so viral for causes and organizations that we support.  I was interested in all this in an intellectual kind of way.

Two things happened to changed my involvement.

It became emotional.

Then it became personal.

First, I heard an interview on NPR, which aired August 20, 2014. They of course mentioned the funds raised Р$31.5 million from July 29-August 20, 2014. They contrasted that with about $2 million raised during the same period in 2013, an impressive increase by any standard. 

Now¬†wrap your head around this – by the time I posted this entry,¬†one day later, donations had increased by $10.3 million to $41.8 million. That’s a 33% increase in 24 hours.¬†That’s¬†viral. [Update: $53.3 million as of 2014-08-22; $88.5 million as of 2014-08-26 ]

But what¬†really¬†struck me was the description of the illness that “essentially traps someone in a glass coffin. You can think, but you can’t move. You can’t speak. And that happens so rapidly, over the course of a couple of years.‚ÄĚ ¬†I reflected how much of¬†my¬†life is movement. From working on my computer, to my recent participation in a triathlon, I¬†move!

The second thing that happened was a challenge thrown down by MaryAnne, a longtime friend and former colleague from Riverside Methodist Hosptial.  Her challenge was in memory of a mutual friend and former Riverside colleague, Elliot, who died of ALS.

Elliot was a role model for me as I travelled through a divorce. He demonstrated the possibility of taking apart a relationship in a way that served the kids long-term, and preserved the dignity of the parents. He modeled that people could co-parent, stay civil, and in fact, be friends. That kind of post-divorce relationship, healthy and healing, was what I hoped for (and that we subsequently created!)

I was struck by the thought of Elliot, a bright, caring and vital person, in that glass coffin.

So I picked up a bucket of ice water…

My hope is that through my actions, and through this post, I’ve added my voice and contribution to increase awareness of and funding for research for ways to treat, and ultimately cure, ALS.

If you are inspired to donate, or want more information on ALS or the #IceBucketChallenge, go to www.alsa.org.

‚Äď Ann¬†Ralston
© 2014 Ralston Consulting Inc.
http://bit.ly/RCI-alsicebucketchallenge

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